Tuesday, March 19, 2013

It is what it is....


Special—adjective --
Surpassing what is common or usual; exceptional:

 Peculiar to a specific person or thing; particular.


All of my doctors—oncologist, radiologist and surgeon are all right around the corner from each other.  However, I take different routes as it is easier to get to Dr Nichols by going down Market and getting on 16th and easier to take Military Cutoff to Shipyard to get to Dr K and Dr Lynn.  Last year, when I was going to them for what seemed to be every day, I was able to gauge how late I was by where I was at a certain time.  I knew I had to hit College and Oleander with 15 minutes to spare or I was screwed getting to Dr K or Dr Lynn.  I have been to Wilmington a million and one times since I had last seen Dr K and I never thought about it.  Until today.  I hit College and Oleander at 9:43am and all I thought was “I got this.”  Strange the things which go through a person’s mind at the weirdest times; then again, it was better than focusing on the am I going to have to have blood drawn today worry. 

            I get there with minutes to spare and am called in by a nurse who I had never seen before, so I behaved myself.  She asked me to get on the scale and then she took my height.  Instead of taking the weight out on her, I stuck with the height.  5’2” --I say… she says no--5’1” and you were 5’1 ½” last time (great, now I am shrinking.  As if I did not have enough things on my mind).  She puts me in a room, asks me a few normal questions and says “the doctor will be in shortly.” Oh please… this is real life, not a TV show—I almost snorted.    Since chemo brain is usually in full swing when I have questions, I get out my trusty pack of note cards (some of you thought I was going to say day planner—nope—I actually LEFT that at home.  Okay, I forgot it, but still, I did not panic).  For the record, I have a ton of them.  Some have writing on them, some are blank—for those moments I have a thought and remember to write something down.  They are clipped together with a pink clip—makes it easier to find as well as keeping them in one place.  I am ready.

            Dr K walks in and gives me a hug, says you look great and laughs when I say “look—I have hair!”  He sits down and starts.  I know he saw the cards, but smart man, he ignored them.  But I figure he has his questions and after a few of them, we get down to business.  It starts with the how is the tamoxifen going.  Hmmm, funny you should mention it… I am having side effects.  So, looking at my cards, I go into the side effects I am having.   I tell him how my joints and bones are aching and how at the end of the day my fingers ache and sometimes I just can’t type. I tell him about the calf cramps and calf spasms.   He looks at me and asks if they are minor, severe and are they affecting my quality of life.  He asks if anything helps, I tell him sometime times I take Advil if it is really bad.   I told him they were annoying, but I was adapting.   That is when he knew it was bothering me.  However, as he went through the 3 possibilities, I knew exactly what he was thinking and I knew I was on it for better or for worse.  Long story short, it is the best for me now and even when he changes it over to something else, the same side effects might occur.  Plus, to add insult to injury, he asked me if I heard about the study and I said yes.  5 years was just upped to 10.   Oh well, I am on this side of the ground. 

            It was then I figured I might as well march on (good thing I had my cards) and told him I had looked up all the side effects and apparently most people have weight loss.  He looked at my chart and said you are better than in September and I told him that was not the point, the point was I was actually trying to lose weight and have even cut out sugar for the most part and he says that is great.  I said not for the cupcake people.  He just started laughing.  Then my stomach starts rumbling—at which point I said—yup- I got that bloating gassy side effect too. He looks at me and says “that is an uncommon side effect” and he just starts smiling.  He lost it when I say ‘’ figures and why do I always have to be the special one?”

            Then, my kind and caring doctor comes back to earth and tells me he is sorry for my side effects and he means it.    He has me figured out, he knows that if it worsens, I will tolerate it so he makes a point to tell me a few times, you are to call me if it gets worse.  And then he sends me on my way with a see you in the fall and you better call if needed. 

            I admit it; I walked out of there pretty down.  I know I should just count my blessings and I know he is keeping me safe but seriously?  5 to 10 more years of this crap? Lovely.   So I did the only thing I could do… I went to Whole Foods and got a 5 star chocolate bar (Lake Champlain Chocolates—the fruit one in case you were interested—awesome I might add).  Yup, I skipped the cupcake.  Okay, I only skipped it as today was not Chocolate Peanut Butter day at Coastal Cupcakes. 

            So, fingers crossed, prayers sent up and lots of hope I will not have to call Dr K before September. 

 

Joshua 1:9

 

               

Sunday, March 17, 2013

Lessons learned


Life is a gift, and it offers us the privilege, opportunity and responsibility to give something back by becoming more—Anthony Robbins


I often wonder why I got cancer (and yes, I usually answer myself with why not --imagine those conversations back and forth—I can carry on quite an amusing conversation with myself at times).  And yes, I do wonder what I did that really pissed God off.  Then I dig deeper and realize there is a lesson to be learned in everything (but I still wonder….).

I am pretty sure the plan was for me to learn a few lessons.  Lesson number one was to never say never or now what.  Saying those words was (and is) an immediate set up for the now what or never to actually happen.  I know, I lived it. More than once too.  I was slow on the uptake; very slow—slow like the sloth.   Lesson number two was let go.  Again, I was a little slow on the uptake, but I got there.  I gave up my day planner, I gave in to my boss, and I just gave into things.  Very hard for someone as independent and yes—I will say it—headstrong as me.         

Lesson number three was facing and conquering my fear of cancer.  As with most people, I have been surrounded by cancer. If you have not been, count your blessings.  I lost a grandmother, a father, a cousin, an aunt, and too many others along the way. The one thing which always made an impact on me was the nausea and all that comes with that (for those that are slow on the uptake—I am talking throwing up/puking, praising the porcelain god... you get the idea).  It terrified me.  I would rather have a shot (with a needle, not tequila) then get sick.  And I HATE needles.  I think God spared me as lesson four kicked in and he was pleased.

Lesson four was, to me, the most important lesson as well as the easiest.  In fact, learning was not even part of the lesson—all I had to do was open my eyes, mind and heart and trust in something which had always been a part of me.  I had to trust my faith.  I will not go much further as I will not force any of my thoughts and beliefs on others (religion, like politics, is a very personal thing).  But I will say God is an awesome God and is always there, we just need to let him in. I never felt alone and I knew he would take care of me. I always, always knew I would be fine and he always surrounded me with a peace I knew only he could provide.

Yes, I learned a bunch of lesson.  I have said it before and I will say it again and again…cancer was humbling.  More than anything, I hated to put my family and friends through it.  I hated putting those who had walked this walk before me through it.   And I hated when people told me I was an inspiration.  I did what I had to do and there was no point in complaining.  Trust me; it was not as bad as it could have been.  Strangely enough, I have been done with treatments since August and yet I am not sure I have really accepted the fact it is over and I am a survivor.  I get to test that survivor thing and finally deal with it on April 12 when I participate in the Relay for Life here in Onslow County  and I walk the survivor lap (and if you would like to donate…here is your chance… shameful, I know, but what the heck!!!) http://main.acsevents.org/site/TR?fr_id=53024&pg=personal&px=5204055   (highlight and hold down the CTRL key and click or cut and paste!).   

Yes, I am nervous as to me, it is a very big step, but one I need to take and in the process, I get to pay it forward and hopefully help prevent even one case of cancer in the future.  To me this step says, you are done and you have won this battle. Something I never could have done without the love and support of family and friends, an amazing medical team and God.  Thank you!