During chemo, you're more tired
than you've ever been. It's like a cloud passing over the sun, and suddenly you're
out. You don't know how you'll answer the door when your groceries are
delivered. But you also find that you're stronger than you've ever been. You're
clear. Your mortality is at optimal distance, not up so close that it obscures
everything else, but close enough to give you depth perception. Previously, it
has taken you weeks, months, or years to discover the meaning of an experience.
Now it's instantaneous. ~Melissa Bank
Well,
round 2 is after the 9:15am sit down with Dr. K. I am ready—it’s time to do it again and see
how this one goes. Things I learned from
round 1:
1.
Portia
is wonderful. I love her. And yes, she scares me as if she ever gets
infected, I would not only spike a really, really high fever (according to Dr.
Lynn) but then Earnest would have to make his appearance (just something else
for the guys—see you were saved by the MALE port. Oh please…).
2.
The
first bag they give is the valium… ahhh… that says it all.
3.
Chemo
was not bad at all. Made a few calls,
did a few minutes for some meetings and then just rested.
4.
I
crash 3 days early… so now we can try to work on that.
5.
The
hair is basically gone, so check that off the list.
6.
Ketchup
takes like metal… there goes the sausage mcmuffin… have to have ketchup. Dang…
7.
Tomatoes
seem to have the same taste as ketchup… hmmmm... do I dare try a piece of pizza?
8.
I
will lose my appetite in 3-4 days so the weight will drop. But, have no fear as it came back during
fatigue week… gained it back. I could
not care less.
9.
The
toilet paper queen (Mom) is now the tissue queen with the purchase of aloe
tissues. It seems a runny nose is a side
effect of chemo.
10.
The
leg cramps are what they are and is a side effect. But he will give me strong stuff to try to
help. He told me I can deal with it for
3-5 days. Guess he thinks I am
strong.
11.
The
nausea medicine worked. That was the
best news ever!
12.
Thrush
sucks…
13.
I
would have no problem being admitted to the 10th floor again—but I
would rather not be. Still, the cherry Italian
ice was great!
Things
to ask Dr. K in the am:
1.
What’s
up with not being able to have Root Beer?!
2.
My
right arm is hurting… am I going to need one of those sleeves and is my arm
going to expand.
3.
If
the wonderful nausea medicine proves to be too weak as time goes by, can I get something
stronger?
4.
Root
Beer?!
5.
Can I eat cooked mushrooms?! Please?!
6.
Sugar
is one of my food groups… so what do I do?
7.
When
the head is finally shiny and no sign of hair, does it stop hurting?
8.
My
feet are starting to get that long word thing. I know I have to wear slippers,
but will it ever stop?
9.
Root
Beer?!
I
have also learned to slow down more than I have. I had to work 8 hours the other day (for me)
and yes, it was hard. I have figured out
I will schedule myself for no more than 6 hours and if I want to and can stay
longer, I will. If I need to leave
earlier, I will. This is a HUGE step for
me. Today I also realized while I love
my Sunday School class and they give me such joy (most of the time!!!), I need
to step back. They are kids and they are
germ carriers (not their fault, just a fact of life, we all were kids
once. I apparently spread the joy with
the Chicken Pox—or was it the Measles?). One had strep and he did not come back (thank
you!), but then I was sitting next to a sneezer. And while normally it would not bother me, I
actually was worried. I don’t need to
get sick and have chemo postponed and while I really did not mind my mini
vacation at New Hanover, I doubt my insurance company would like it.
I
have also learned it is faith which has sustained me this far and will continue
to sustain me throughout this entire “blessing”. Hebrews 11:1.
Tomorrow.. one more step towards staying healthy!!!! GO GIRL!!! YOU HAVE A CHEERING SQUAD!!!!
ReplyDeleteMy prayer is that you maintain your sense of humor throughout.
ReplyDeleteCombined with faith, its the most essential survival item.
Love to you
thanks Lori-- you know I will keep the humor... glow, glow!!!!
DeleteAsk the Dr. if extra potassium (potatoes, bananas) would help with the leg cramps or if it would wreak havoc with your other levels (David's is in his kidney so, aside from wishing I had paid attention in chemistry, I have to watch everything he eats and drinks). Two down, how many more to go? You'll make it Jersey gal!
ReplyDeletewell-- still have 5 more to go as today did not happen.. next week... my potassium is actually good-- apparently it is a side effect of the taxitier-- more like bone aches.. good drugs. I just don't want to know-- I let them tell me what I need to do... why stress my self even more? If I have questions, I ask Bill
DeleteLiza, do you realize the strength you give others through your blog? Another gift of yours!!! Caeden's nose has not stopped running either..Shannon always puts a long sleeve shirt on him, so he just swipes away! Your faith and sense of humor will really see you through this..not that I have the right, but I'm really proud of you and full of admiration. Keep it up!!! Arlene
Delete